Sandy's Steps to edge out ALS

NOTICE:

PRIZE: PERSON WHO BRINGS THE BIGGEST SPONSOR TO THE WALK WILL RECEIVE A FREE NIGHT STAY AT VERNON DOWNS HOTEL AND CASINO AND A DINNER FOR 2 AT THE DOWNS

DONATED KINDLY BY JEFF GURAL

A very special thanks goes out to John Turcotte and Chirstiana Purvis for their gracious donations.

Join Us

Whether you are a lifetime advocate or new to our cause, we invite you to join us. We welcome new ideas and value enthusiasm from members and volunteers, new and old.

 

About Us

Sandy's Steps to Edge Out ALS is a non profit organization reaching out to those with Lou Gehrigs Disease. Sandra Tulga, whom this organization is in honor of, was effected by this horrible disease but instead of taking pity on herself she encouraged people like us to take action. No matter what her day brought, she faced it with a smile on her face. She was the most courageous and beautiful person I have known. We, family and friends, made a promise to her that we would create a walk/organization in her honor in St. Lawrence County to find a cure for this disease. Half of our proceeds will go towards a family struggling with ALS locally and the other half will be sent to Institutes to aide in their research for a drug for ALS. Please help us carry out our promise to Sandy and give back to our community.

Contact us here.

Our Work

ALS is often called Lou Gehrig's disease after Lou Gehrig, a hall-of-fame baseball player for the New York Yankees who was diagnosed with ALS in the 1930s. People in England and Australia call ALS motor neurone disease (MND). The French refer to it as maladie de Charcot, after the French doctor Jean-Martin Charcot, who first wrote about ALS in 1869. Lou Gehrig's disease damages motor neurons in the brain and spinal cord. Motor neurons are nerve cells that control muscle movement. Upper motor neurons send messages from the brain to the spinal cord, and lower motor neurons send messages from the spinal cord to the muscles. Motor neurons are an important part of the body's neuromuscular system.